It is estimated that 112 children experience the death of a parent every day in the UK (Child Bereavement Network). This does not include all the children who are living with a parent with a life-limiting illness. I have founded A Lonely Place to Be, a campaign which aims to raise awareness about children’s experiences when living with a parent who has a life-limiting physical illness. Children living with parental physical illness often feel that they are in a lonely place. We know that they face many changes and challenges throughout the illness and that this period can be more stressful than the time after the death.
The campaign is about finding solutions to a problem. Life-limiting illness is not prejudiced and can and does affect families from all social backgrounds. What is constant is that children in the family will inevitably be affected by what is happening. The campaign is also about finding ways to improve children’s experiences when they are living with a parent who has a life-limiting physical illness.
The campaign is based on simple ideas for addressing this issue and for making a difference.
Are you a child, young person or parent who has been affected by parental life-limiting physical illness?
Do you have a story to tell about living with a parent with a life-limiting physical illness or being a parent with a life-limiting physical illness?
I would love to hear from you if you do. These stories are important to help create a jigsaw of experiences which will be used to help develop our understanding of what it is really like to be in this situation. I have got an idea about what it might be like but because I have not been in that situation I don’t really know.
Your stories could be used as part of the campaign or for other publications. All submissions will be anonymous. Please remember that I am unable to give any direct advice or support.
Are you able to support Rachel to make change? Can you help to influence the campaign? If so Rachel would really like to have a conversation with you.Contact Rachel
If you're a child, young person or parent who has been affected by parental life-limiting physical illness Rachel would love to hear from you.Submit Your Story